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PGAD from spinning – treated by pudendal nerve blocks

dreadful

The best part of my sad journey, led me to the San Diego sexual Medicine clinic, where with the help of Dr. Goldstein, I am now receiving pudendal nerve blocks where I am getting about 80% relief from this “monster inside me”. Im glad to report that I only had to receive one injection with the last treatment its been working so well. Im doing great and will keep everyone posted!

4 Comments

dreadful

I am a 54 year old woman who was diagnosed with persistent genital arousal disorder otherwise referred to as “PGAD” My problem started out as being in a constant state of arousal associated with severe clitoral pain. Not only did I endure the physical discomforts but also the mental strain of misdiagnoses and perceptions that it was “all in your head” Such analysis from trained specialists can certainly bring one to a state of depression. After months of searching for answers it was recommended that I seek help from a physician at UCLA medical center where, after an extensive pelvic exam, I was able to put a name to this dreadful condition, “PGAD”. I was then referred to another physician who put me through a series of epidural blocks, which seems to be one of the only cures for this dreadful condition. At first, it seemed to help, but then the “monster inside me” started to rear its ugly face again and I was back where I started. I was at the lowest point of my life by now. I knew what I had but I didnt know there were other options available for my problem. By luck (and I mean luck), I was on the computer one nite, and for whatever reason I fell into the website of Dr. Goldstein., and the sexual medicine clinic in San Diego. Long story short, I made an appointment, and I am now happy to report that I am under the care of Dr. Goldstein and his associates. He believes the PGAD was related to my spinning.

I really enjoyed my bicycle spinning classes. He said that the finding of pudendal nerve tendeness at the ischio-pubic rami can be a manifestation of perineal trauma from spinning. I am now receiving pudendal nerve blocks that take my pgad levels from 10 to 3 to sometimes 0. Right now the injections are lasting for about 2 months. In the past I was getting both nerves blocked and now I only seem to need one nerve block. The relief is beyond fabulous, and only someone who has been thru this nitemare can understand. I will keep getting the injections as needed, with the hope of longer intervals of relief. I am forever grateful.

dreadful

I just wanted to say hello and let you know the latest. The last time the pgad monster reared its ugly face to about a 7 to 9/10 was late July 2010. Dr. G. did my third marcaine/kenalog pudendal nerve block – this time only on one side in early August. I did not let this get me down, I hung on. Just wanted all to know that I have been pgad free for over 2 months. It’s so good to feel normal!

Penguinsmiles

I just found out today that I have PGAD secondary to vulvar vestibulitis syndrome. From what I understand, the pelvic floor spasms caused by my VVS are constricting the pudendal nerve and causing the PGAD. It’s only been a couple of months since the PGAD started. I’ve been having vulvar pain for almost 2 years. The two combined are miserable.

I appreciate you posting your experience. It gives me hope that there is a way to make the pain stop and I’m glad you are doing so well!

dreadful

I am happy to report that my pgad levels have been maintaining at about 0 to2, thanks to the nerve blocks that I have been receiving about every 3 months. Im being optimistic with hope that I will get longer periods of relief from this dreaded problem. I will keep everyone posted on my progress. god bless!

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